Welcome to the MJDF portal!
Tasks to complete
Videos
MJDF video – MJDF Going On Country
https://www.youtube.com/watch?v=ki047Gw0z-k
MJDF video – Safe Manual Transfers
https://www.youtube.com/watch?v=L771c215cF4
MJDF video – proper approach
https://www.youtube.com/watch?v=px4qSav4qbc&t=234s
Tip Sheets
Blog Posts
MJDF News
International Congress for Ataxia Research – London, November 2024
The International Congress for Ataxia Research happens every two years. This year it will take place from the 12th to the 15th of November 2024, in London, United Kingdom. At the Congress, people with ataxias like MJD, researchers, doctors, and carers will learn about...
Australian MJD researchers at the Society for Research on the Cerebellum and Ataxias Symposium, Mumbai, India, 10th to 12th May 2024
The Society for Research on the Cerebellum and Ataxias had its research meeting in May 2024 in Mumbai, India. MJD researchers from Melbourne attended. Associate Professor David Szmulewicz, Associate Professor Ian Harding, and Dr Louisa Selvadurai talked about their...
MJDF Tips & Resources
MJD therapy development pipeline
The National Ataxia Foundation (USA) has created an image to show the progress of therapies for MJD. You can view it here: https://www.ataxia.org/pipeline/sca3/
MJD Foundation website
The MJD Foundation website contains a lot of useful information about MJD, including news and resources for families. Access the MJD Foundation website here: https://mjd.org.au/
Thank you for participating in this research study, “A novel clinical monitoring and education platform for Indigenous Australians with rare neurodegenerative ataxias”. The study has been approved by the Human Research Ethics Committee of NT Health and Menzies School of Health Research (Ref 2024-4799).